We are committed to preparing your loved one with Down syndrome for a meaningful, productive, and authentic adult life! This requires future planning for parents and caregivers—and we are here to guide you every step of the journey! Long-Term Planning Consultations offer individualized support to parents/caregivers to better prepare for the transition towards adulthood. Tasks or topics may include identifying your county's developmental disability organization (CDDO), navigating the IDD eligibility process, understanding options for case management, referrals to attorneys and special needs financial planners, and defining action steps towards long-term goals. Our Lifespan Service Team will help you prioritize and plan according to your loved one’s age and your family’s specific situation. 

Please register and then we will contact you to schedule an appointment that works for your family.  Appointments can be in-person at DSI or via Zoom.

Neuru is a secure, all-in-one platform designed to help families manage the many moving parts of their loved one's care without the overwhelm. We centralize school plans, medical records, and therapy notes into one easy-to-use system, so everything you need is always in one place. You have the ability to import records directly from hospital systems like Advent, Children’s Mercy, St. Luke’s, University of Kansas Health System, and more.

Instead of juggling emails, binders, portals, and paperwork, families can quickly access, organize, and share critical information with teachers, therapists, doctors, and caregivers. Neuru helps ensure everyone on your child’s care team stays informed, aligned, and focused on what matters most: supporting your child’s growth and success.

Built with neurodiverse families in mind, Neuru reduces stress, saves time, and brings clarity to complex care, so families can spend less time managing logistics and more time being present.

¡Les invitamos cordialmente a nuestra primera Reunión Familiar de 2026!

Nos complace contar nuevamente con la participación de nuestros amigos de KUARDC, quienes nos acompañarán para ofrecer una presentación sobre nutrición. Jaime Perales Puchal y Kelly Loeb, miembros del equipo de KUARDC, se encargarán de la traducción y la presentación.

Este evento tendrá lugar el 6 de mayo en Down Syndrome Innovations, por lo que les animamos a registrarse para recibir recordatorios a medida que se acerque la fecha. Se ofrecerán refrigerios. Si tienen alguna pregunta, pueden escribir a CJ a cj@kcdsi.org. ¡Les deseamos un excelente día!

Caregiver Connection: Aging Years offers an opportunity for caregivers to discuss resources, strategies, community supports, and challenges related to caring for an aging loved one with Down syndrome.

We understand this is a growing group of entire population we serve, with unique challenges and experiences, and we hear how important it is for you all to feel connected. We hope that meeting one another in this group will organically open up opportunities for you all to spend time together face to face as you develop meaningful connections with one another.

All registered participants will receive a Zoom link from the instructor. 

This seminar will focus on providing parents and caregivers with a clear understanding of the IEP transition process, from the legal requirements to the best practices for ensuring a smooth and successful transition from school to post-school activities.

With a focus on education, employment, and independent living, the seminar will break down the steps parents can take to actively support their child’s growth and future planning, offering actionable strategies and resources that can make a real difference. This session is led by Kathryn Holmes, our Director of Continuing Education. Kathryn created and implemented a transition program in the Kansas City, Kansas school district for over 25 years and shares both the teacher and parent perspective. 

Caregiver Connection: DS – ASD is a virtual gathering of caregivers to discuss resources, strategies, community supports, and challenges related to a child or adult’s current or potential dual-diagnosis of Down syndrome and Autism Spectrum Disorder.

This group is facilitated by Down Syndrome Innovations staff, and we will occasionally invite special guests with expertise in this area.  This is a complimentary caregiver education opportunity, provided in addition to the individualized services we provide directly for individuals with DS-ASD for the purpose of skill-development, improving self-regulation and behavior, and increasing independence.

We are providing this group virtually to ensure we are being inclusive of families throughout the region and those who are not able to access transportation, as we understand that facing a dual-diagnosis can already feel isolating in and of itself.  We understand this is a subgroup of the entire population we serve, with unique challenges and experiences, and we hear how important it is for you all to feel connected. We hope that meeting one another in this group will organically open up opportunities for you all to spend time together face to face as you develop meaningful connections with one another.

All registered participants will receive a Zoom link from the instructor.