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Expectant and New Parent Support
Music and Motion for Babies and Toddlers
with Alyssa Jones
Ages: 0 - 3
Dates: Jan 16th, Feb 28th, March 13th, April 11th, May 15th, June 20th, July 17th, Aug 15th, Sept 11th, Oct 17th, Nov 13th, Dec 5th (Alternate Fridays & Saturdays)
Time: 9:30am-11am
Location: DSI -Large Therapy Room
Description: Join us for a joyful and engaging class designed for babies, toddlers, and their caregivers! Music & Motion blends tummy time, music, and movement to support early development in a fun, relaxed setting. Each session includes songs, mini instruments, and gentle guided movement — followed by time to connect with other parents over coffee and snacks.
Whether you’re a new parent or looking to build your village, this is a great space to bond, play, and grow together.
This service is for babies and toddlers with Down syndrome who are 6 months- 3 years old and caregivers. Childcare for siblings is available per advanced request in the registration form.
Advocating for your Child's Medical Care
with Dr. Kristie Marble, DO
This presentation provides a clear overview of what to expect during well-child visits, including current Down syndrome medical guideline recommendations and the core responsibilities of a primary care provider. Key components such as growth and developmental monitoring, routine screenings, immunizations, and anticipatory guidance will be outlined to highlight what high-quality preventive care should include.
The session will also address common pitfalls and misconceptions that medical providers may have—such as missed developmental concerns, inconsistent follow-up of abnormal findings, or gaps in family education—and will describe how to recognize these issues in practice.
Dr. Kristie Marble is a board-certified Pediatrician and a board-certified Pediatric Hospitalist at Children's Mercy Kansas City. In addition to her hospitalist role, she proudly serves as one of the pediatricians in the Multidisciplinary Down Syndrome Clinic. Her dedication to the Down syndrome community is both professional and deeply personal as it was sparked 17 years ago following the birth of her daughter, who was diagnosed with Down syndrome right after birth. This personal journey inspired her to become an expert in the field and commit herself to educating medical professionals. She is now excited to leverage both her clinical expertise and lived experience to support and educate other parents and families navigating their own paths, in partnership with Down Syndrome Innovations.
If you have any questions please email CJ, at cj@kcdsi.org
Music, Dance, and Sensory Play at Rough & Bumble
with Alyssa Jones
Ages: 0 - 5
Music, Dance, and Sensory Play @ Rough & Bumble
Address: 413 Delaware St, Leavenworth, KS 66048
Saturday, July 18th from 9:30–10:45 AM
A lively blend of music, movement, and sensory exploration for ages 0–5
($5 per child, and siblings are welcome)
This is a combo class of Music & Motion and our Rhythm & Play coming together. This class invites young children to move, groove, and explore in a fun, developmentally supportive environment. We will have a private room to start our class for our introductions, music, and rhythm.
Midway through class, children transition into sensory play breakout and explore the equipment at the play cafe.
Designed for all abilities, this class encourages social connection, creativity, and joyful movement—helping preschoolers build important skills while having a blast.
If you have any questions please email alyssa@kcdsi.org
New Parent Breakfast
with Alyssa Jones
Dates: Feb 7th, May 2nd, Aug 1st, Nov 7th (Saturdays Only)
Time: 9am-11am
Location: DSI
Description: Join us for one — or all — of our New Parent Breakfasts!
This welcoming event is designed for new parents and extended family members (prenatal to 2½ years old) to connect with others who have a young child with Down syndrome.
Meet parents at different stages of their journey, learn about the services and support provided by Down Syndrome Innovations, and enjoy a relaxed, family-friendly environment. You’ll have the chance to ask questions, exchange resources, and explore our campus.
Each breakfast also includes a facilitated discussion to help families connect, share experiences, and build community.
These family connection events are FREE/DONOR-FUNDED thanks to our Step Up Walk donors, grantors and Community Partners! Breakfast and childcare are provided, so please RSVP so we have adequate accommodations!