We offer family-centered, strengths-based therapeutic services designed to promote long-term success to people with Down syndrome in their unique home and community life. Our dynamic therapy sessions focus on functional, community-based and home-based skills in the domains of community participation, communication, life transitions, social/emotional, sensory, and activities of daily living. Our therapy team includes an occupational therapist (OT), a speech-language pathologist (SLP), and a Board Certified Behavior Analyst (BCBA). Children, teens, and adult self-advocates will work with a therapist on goals that are meaningful to your family. 

Completing this registration will inform us you are interested in an intake conversation to discuss your loved one's needs and learn more about how our services can support your family.

Our intake process is complimentary. Fees-for-service for the elected service and the available funding subsidies will be discussed in the intake.  Families sign a service agreement prior to any billing. Payment plans are available.

Dates: Jan 16th, Feb 21st, March 13th, April 11th, May 8th, June 20th, July 17th, Aug 15th, Sept 11th, Oct 17th, Nov 13th, Dec 5th (Alternate Fridays & Saturdays) 

Time: 9:30am-11am 

Location: DSI -Large Therapy Room

Description: Join us for a joyful and engaging class designed for babies, toddlers, and their caregivers! Music & Motion blends tummy time, music, and movement to support early development in a fun, relaxed setting. Each session includes songs, mini instruments, and gentle guided movement — followed by time to connect with other parents over coffee and snacks. 

Whether you’re a new parent or looking to build your village, this is a great space to bond, play, and grow together. 

This service is for babies and toddlers with Down syndrome who are 6 months- 3 years old and caregivers. Childcare for siblings is available per advanced request in the registration form. 

Dates: Feb 7th, May 2nd, Aug 1st, Nov 7th (Saturdays Only) 

Time: 9am-11am 

Location: DSI 

Description: Join us for one — or all — of our New Parent Breakfasts! 

This welcoming event is designed for new parents and extended family members (prenatal to 2½ years old) to connect with others who have a young child with Down syndrome. 

Meet parents at different stages of their journey, learn about the services and support provided by Down Syndrome Innovations, and enjoy a relaxed, family-friendly environment. You’ll have the chance to ask questions, exchange resources, and explore our campus. 

Each breakfast also includes a facilitated discussion to help families connect, share experiences, and build community. 

These family connection events are FREE/DONOR-FUNDED thanks to our Step Up Walk donors, grantors and Community Partners! Breakfast and childcare are provided, so please RSVP so we have adequate accommodations! 

This presentation provides a clear overview of what to expect during well-child visits, including current Down syndrome medical guideline recommendations and the core responsibilities of a primary care provider. Key components such as growth and developmental monitoring, routine screenings, immunizations, and anticipatory guidance will be outlined to highlight what high-quality preventive care should include.

The session will also address common pitfalls and misconceptions that medical providers may have—such as missed developmental concerns, inconsistent follow-up of abnormal findings, or gaps in family education—and will describe how to recognize these issues in practice.

Dr. Kristie Marble is a board-certified Pediatrician and a board-certified Pediatric Hospitalist at Children's Mercy Kansas City. In addition to her hospitalist role, she proudly serves as one of the pediatricians in the Multidisciplinary Down Syndrome Clinic. Her dedication to the Down syndrome community is both professional and deeply personal as it was sparked 17 years ago following the birth of her daughter, who was diagnosed with Down syndrome right after birth. This personal journey inspired her to become an expert in the field and commit herself to educating medical professionals. She is now excited to leverage both her clinical expertise and lived experience to support and educate other parents and families navigating their own paths, in partnership with Down Syndrome Innovations.

If you have any questions please email CJ, at cj@kcdsi.org

World Down Syndrome Day is Saturday, March 21st and we are hosting a party for all of our families in midtown Kansas City! This event posting will be updated in January with more details. Stay tuned to our social media and email announcements.  SAVE-the-DATE for now because you don't want to miss this event!