Down Syndrome Innovations is committed to vetting and mobilizing resources for our families, and this specific resource we are recommending is from MPACT. MPACT, Missouri's Parent Training and Information Center, has a  mission to empower families to advocate for themselves so that children with special education needs can reach their full potential in education and life – through support, training, and education.

MPACT is offering this video series:10 Steps of The Special Education Process Video Series

Navigating the special education process can feel overwhelming, but you don’t have to do it alone. Missouri Parents Act (MPACT) created this 10-part video series to help families understand each key step of the special education journey under the Individuals with Disabilities Education Act (IDEA).

Each short video breaks down a specific part of the process. From evaluation and eligibility to IEP meetings and progress tracking—so you can become a confident partner in your child’s education.

Watch the full series below to learn how to advocate effectively and ensure your child receives the support they need to thrive in school.

To access this video series, click here:

https://www.missouriparentsact.org/school-age-services/special-education-what-you-need-to-know/

Researchers at the Linda Crnic Institute for Down Syndrome and Boys Town National Research Hospital are working together to better understand hearing and balance in people with Down syndrome.

This research study offers a single appointment to test your hearing and give a biological sample. Participants will receive hearing and balance test results and join one of the largest biobank studies for Down syndrome research.

Upcoming Events

Down Syndrome Innovations

September 25-30

5916 Dearborn St, Mission, KS 66202

REGISTER HERE!

Applicable to people with Down syndrome who:

- Are between the ages of 5 years to 65 years

- Do not wear a cochlear implant

*Participants must be accompanied by a study partner.

The 2026 Johnson County CDDO Resource Fair is scheduled for Thursday, Oct. 1, from 2-6 p.m. at the Johnson County Arts & Heritage Center.

This event routinely features more than 60 local service providers and other community resources available to people with IDD in Johnson County. The CDDO team will also be on site to help with questions and to begin intake paperwork.

The Kansas Council on Developmental Disabilities, in partnership with Down Syndrome Innovations, is proud to host the 3rd Annual SPEAK Up! (Self-advocates Promoting Empowerment and Access in Kansas) conference — a free event designed for self-advocates, parents, family members, caregivers, and professionals on Friday, November 6th, from 8 AM to 3 PM in Wichita at the Drury Plaza Hotel Broadview.

This empowering day will feature inspiring keynotes, interactive workshops, and thought-provoking discussions led by advocates, activists, organizations, as well as federal and state financial, legal, and benefits experts working to enhance resources and information for Kansans with IDD. Participants will explore real-life experiences and expert perspectives on the most critical issues facing individuals with disabilities and their families today.

Learn more about the conference here

Register Here!

Join us for a festive Holiday Party for all families in the Down Syndrome Innovations community! This is a chance to celebrate the season together, connect with other DSI families, and enjoy a morning of community and cheer.

When: Saturday, December 5th, 2026, from 9:30-12:00 PM.

Where:  KBP Brands, 11141 Overbrook Road, Suite 400, Leawood, KS 66211.

This event is open to all families connected to DSI programs. We can't wait to celebrate the holidays with you!

Join Us for our 3rd Annual Advocacy Day at the Kansas State Capitol in 2027!

Advocacy Day is a chance to learn about advocacy, meet other advocates, and talk with lawmakers about issues that matter to people with Intellectual and Developmental Disabilities (IDD).

YOU must be registered to attend so our KCDD team can schedule your legislative visits accordingly.

Register here!

Parenting or caregiving can feel isolating, but you don't have to do it alone. If you're a parent or caregiver of someone with a developmental disability in Platte or Clay County, join us for a relaxed evening of connection, conversation, support, and shared experiences with others who understand the journey.

Contact Nikki Peterson at nikki.peterson@pcbsdd.org to learn more or request the date of the upcoming session.